The Lifelong Fight of Childhood Cancer
By Lora Jackle Childhood Cancer Awareness Month…every year, I make it a personal mission to spend the month of September raising...
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Guilt-Free Apps for Your Extra Lucky Kiddo!
We LOVE providing our community with valuable resources. This list of educational apps was curated and tested by our amazing ELM...
The Modeling World Needs Some Extra Lucky Faces!
Written by: Jess Quarello The question I get asked the MOST about Adeline is how I got her into modeling. I thought I would put the...
Innerhive
Hello fellow Extra Lucky families and advocates! We are excited to share the launch of a new care management tool for families and...
Small Heroes
Today is World Duchenne Awareness Day. Duchenne is a fatal genetic disorder with no cure considered to be one of the most severe forms of...
Extra Lucky Hospital Stay Must-have Checklist
We have all been there...the hospital with our extra lucky kiddos. Sometimes these hospital visits are planned in advance and scheduled...
First Birthday Tribute
By: Lauren Cowin I didn’t buy in to the whole “lucky” thing at first. Sure, I accepted my 95% NIPT screen as fact. I worked hard at...
The Importance of Sleep in Children with Special Needs and How to Get More of It!
Written By: Sarah Bossio of Your Zen Baby Sleep Gosh..SLEEP! It’s the one topic that connects all parents around the world. We are...
Dear Autism Mama
Written by: Renee Sellers Dear Autism Mama, I’m sorry. I didn’t know then what I do now. I didn’t understand. I'm sorry that when your...
When superhero mamas get recognized
We love when Extra Lucky mamas are recognized for being superheroes! This month, our amazing Dear Mama contributor, Sarah, received a...
Fragile X
Written by: Maddy Rose I began my pregnancy journey like so many moms, excited and full of joy. I was thinking about names and how life...
Cytomegalovirus?
Written by MarySusan Asters "You've lost 9 lbs, do you feel okay?" These are the words my doctor asked at my 32-week check-up. I think I...
July is Disability Pride Month!
It's Disability Pride Month! Here at ELM, disability pride is really every day. Here are some ways you can celebrate with us this month:...
The IEP Me Book
Here at ELM we are dedicated to being a place of community and support while also providing resources that you all find valuable. Taryn...
Hear from an extra lucky big sister!
Written by Bailey Mallon I am writing this article as the older sister of a girl who has Down syndrome. It seems that most parents who...
Extra lucky potty training tips from a pro!
Written by Allison Jandu- Potty Training Consultant and powerhouse behind @pottytrainingconsultant Extra lucky kiddos often require extra...
Inclusion is...
By Marya Ketchell Inclusion lives in the heart of the mother who sends her child with a disability off to school, the playground, and if...
How dare insurance put a price on my child's life?
Advocating for your children is an instinct that kicks in for many the moment that you or your partner finds out you are expecting a...
5 Reasons NOT to overlook the parent of a child with a disability
By Taryn Lagonigro Picture this: You're a manager deciding between two employees for a promotion. On paper, both employees are equally...
Sarah's Story
At the beginning of the COVID-19 pandemic, Hartland Township mom Sarah Raphael found herself pregnant again. 'I'd already been going...
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